Good Evening!
I have been very humbled by the numbers of people worldwide that this blog has reached. As a caregiver for 25 years, and gotten to know many other parents along the way, it has become clear that there is a gap between caregivers and agencies. My personal belief is that with money and personnel at such a premium, the resources must go directly to the care of the children. Unfortunately the result is that this leaves parents to feel their way through the dark. This can cause caregivers to become frustrated and children to miss out on the level of care that they desperately need.
With this is mind, I have founded the Caregiver Advocates Network (CAN). The mission is to narrow the gap by placing important information on the website www.mycaregivers.org
The immediate goal is to use the website to create a directory of service providers in the local area so caregivers can more quickly identify who to reach out to. Another goal is to create meetings with caregivers to find out what information and services they are in the most need of, and then to take action to post the answers. Also on the immediate list is to attend agency meetings and symposiums to represent the caregiver point-of-view.
The blog will continue to run with posts specific to Tyler and our family's experiences. The website www.mycaregivers.org will be centered on advocating for the caregivers of the local area. There is also a link off of the website to reach Tyler's blog to make it more convenient.
Again, thank you for your support and please feel free to visit the website as well!
Be well and God bless. Tom
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